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Autonomic Nervous System Disorders And Syncope Information Outreach Organization 

"Helping those with Autonomic Nervous System Disorders and Syncope."
 
Before we get into the introduction of our site I would like to offer a "Thought for the Day" by way of a man I have had posted on my sites for many years.  The Daily Motivator, Mr. Ralph Marston.  
 


We all have important values and ideas, things we care about and want to share. Sometimes we feel our ideas can even change the world, and we want to let other people know how they can join in and make all our lives better.  Too many times they are set up by people who have nothing to do with a charitable organization just ripping you off. 
 
This site is being developed for this exact reason.  The Founder of Adasio.org is dedicated to helping others who have the same and similar disorders affecting his life not necessarily the ones he has.  If he does not know what it is he will find out through researching it.  During his battles with these disorders he found there was lots of miss-diagnosis, miss-information, lack of information and most of all lack of support, not only from healthcare providers, physicians,  medical staff and government agencies, but from friends, family, loved ones and the community.

As you browse this site you will be able to get information, advice, ideas and support while dealing with your specific disorder, disease or ailment.  If you do not see something you would like to have info on or should be included in this site you are most welcome to send us your suggestion.  This site is not just dedicated to the area of Autonomic Nervous System Disorders (ANSD), Postural Orthostatic Tachycardia Syndrome (POTS), Syncope and Dysautonomia.  We are trying to help people with all types or disorders, diseases and ailments which affect their daily lives to include their family, friends and loved ones.  However, we are focused mainly on ANSD, POTS, Syncope and Dysautonomia.

 

This site will present our organization's cause or ideas to the world. As communicating isn't always easy, we'll try to include photos, diagrams and images to convey our message and to better serve thos of us who are more visual oriented. We'll also include specific information about our organization and its members, so no one forgets the people behind the pictures.

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Chuck Callahan

The picture to the left is Me, Chuck Callahan, the Founder/CEO of Adasio.org. It is a picture from a few years ago.  Now I am a bit greyer and a heavier. 

I was miss-diagnosed with Vasovagal Syncope in 2002, by a local medical center, which will be discussed further in the "About Us" section of the site. I was properly diagnosed with Dysautonomia and a Variant form of POTS in 2010, after having a near death experience in June of 2009.  I had a Pulmonary Embolism (PE), which almost took my life, at the age of 48.  After the PE things got tough.  It seemed as everything was slowing to a halt and every day I was preparing for the worst.  I have been through as much or more than some with POTS/Dysautonomia and some other disorders and diseases I have which I will speak more about in the "About Us" section of the website.  Enough about me.  Let's get back to the site and the information about POTS, Dysautonomia and some other medical issues.  

As new people join the organization and the site we will try to acknowledge them as best we can.  I am a very casual person so I will be as casual with things as I can.  If there is a term, disease, disorder, etc., I will try to explain it in layman's terms so we are all on the same page.  

The site is in a constant state of change due to the changing nature of the medical field, cures, new medical breakthroughs, new medicines, procedures, information and additions to the many forms of these disorders and diseases.  With this being said you will want to check back frequently to see what we have added.  We will try to flag the new sections as best we can.  If you see an error on the site, we will check it out.  Just give us the page and about where it is at or copy it and send it to us. If it is in error, we will change it.  If it is not, we will get a hold of you and let you know why it is not in err.


Medical Disclaimer

You must not rely on the information on this website as an alternative to medical advice from your doctor or other professional healthcare provider.  If you have any specific questions about any medical matter you should consult your doctor or other professional healthcare provider.  If you think you may be suffering from any medical condition you should seek immediate medical attention.  You should never delay seeking medical advice, disregard medical advice, or discontinue medical treatment because of information on this website.

Mission Statement

Temporary Mission

The mission, as of this date, of this organization is to provide individuals with Autonomic Nervous System Disorders, to include and not limited to; POTS, Dysautonomia, Syncope and other diseases and disorders, information and support about and on the disorders and diseases by providing medical, personal, experimental, proven reliefs, medications, advice, definitions and support by use of the web pages on this site, blogs, e-mail, phone and mail service, in a free manner, unless otherwise decided by the organization.

Information Privacy

The information given to the site for use in communicating information or corresponding will not be sold, given or otherwise distributed to any other person, organization or business, unless directed otherwise by the individual, business or organization who has given the information to us. 

Health Insurance Portability and Accountability Act of 1996 (HIPAA)

We do not have to comply with HIPAA but we are going to do our best to not share any personal health information (PHI) of any responding to our site.  We cannot regulate the usage of personal medical information given on the blog page when it is up an running.  Persons sharing on the blog will divulge the information they are comfortable with.  Private conversations with individuals seeking assistance will get the same respect as if we had to comply with HIPAA.  Unless deemed necessary by the organization  we will not require individuals to sign or agree with HIPAA utilizing an agreement letter of any type at this time.

MISC

Well with all this being said please feel free to browse the site, read the information, share the information and ask questions by sending us a message on the contact us page.  If you have suggestions or would like further information or research done on a particular subject please forward it to us using the same method.  Suggestions, comments and complaints will be reviewed and considered by the organizational staff.  Appropriate items will be utilized as the organization see fit to use it.  Inappropriate, illegal or misleading information will not be considered for posting.  

Graphic and inappropriate materials warning!

Some of the information, pictures, graphics and procedures on this site may be disturbing to some individuals, so please use caution when reviewing pages of the site as they may show medical procedures, pictures, parts of human anatomy, graphics or information which may not be suited for all age groups. 

Please get in touch to offer comments and join our mailing list.
Go to the "Contact Us" page.

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